Join @cmtdefy and HNF in MD! We’re 1.5 months away from the 2026 CMT Summit Retreat hosted by the Hereditary Neuropathy Foundation happening in Maryland this April 16-18! I wanted to highlight a few few things that will be happening at the Summit: ⭐️ Make an impact by participating in research studies real time! ⭐️ Learn how AI will impact CMT research ⭐️ Surgery and bracing consultations ⭐️ Exercise and CMT (with me and @allbodiescommunity ) ⭐️ How to manage symptoms ⭐️ Advocacy: like in the wo
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Join @cmtdefy and HNF in MD! We’re 1.5 months away from the 2…
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FacebookHereditary Neuropathy Foundation
📍 Ellicott City, Maryland 📅 April 16–17, 2026 🔗 Link in bio or CMTsummit.org This year’s Summit is more than a meeting — it’s a space to learn, connect, recharge, and celebrate life with CMT, alongside patients, families, clinicians, researchers, and partners who are moving the field forward together. What You’ll Experience 1. CMT Research & Clinical Trials Learn about the latest research, active and upcoming clinical trials, and how patients are shaping progress. 2. Patient Stories & Shared
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📍 Ellicott City, Maryland 📅 April 16–17, 2026 🔗 Link in bio or CMTsummit.or…
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6 months ago
MSNWFMY-TV Greensboro
🎉 This CMT Awareness Month, HNF is introducing our NEW “CMT Self-Care: 📘 A 30-Day Journal,” and thoughtfully crafted guide designed to help you prioritize your well-being in the midst of life with CMT. Free as a PDF or on Amazon using link below! All proceeds will fund CMT research. 🥊 🔗https://www.hnf-cure.org/patience-resources/emotional-and-mental-health/cmt-journal/ #charcotmarietoothdisease #cmtawareness #cmtawarenessmonth #cmtwegotthis | Hereditary Neuropathy Foundation
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🎉 This CMT Awareness Month, HNF is introducing our NEW “CMT Self-C…
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FacebookHereditary Neuropathy Foundation
Thank you, CMT Champion, Elsa & family for donating 10 gently used gowns to CMT Gowns That Give! Let’s turn fashion into fundraising for CMT research! 🔗 Link in bio or visit CMTGownsThatGive.org Have a formal dress tucked away in your closet? It’s time to let it shine again—for a cause that truly matters. We’re going strong with CMT Gowns That Give, a nationwide campaign turning donated dresses into real impact for the CMT community. Whether it’s from a prom, wedding, or gala, your gently loved
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Thank you, CMT Champion, Elsa & family for donating 10 gently use…
923 views5 months ago
FacebookHereditary Neuropathy Foundation
What Is CMT? | Charcot–Marie–Tooth Association
What Is CMT? | Charcot–Marie–Tooth Association
Mar 23, 2025
cmtausa.org
Living with CMT isn’t just physical — it’s emotional, too. Jennifer, a nurse practitioner and CMT Dream Team Ambassador, shares insight from a powerful Johns Hopkins study connecting chronic illness, pain, and mental health. It’s time we talked more about what can’t be seen. #CMT #MentalHealthAwareness #ChronicPainAndDepression #DisabilityAwareness #CMTDreamTeam #CMTSpeakOut #cmtwegotthis #hnf4cmt #charcotmarietooth | Hereditary Neuropathy Foundation
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Living with CMT isn’t just physical — it’s emotional, too. Jennifer, a n…
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Talking about CMT can be life-changing for some people! Thank …
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Warm Holiday Wishes From All of Us at HNF! Dear HNF Family, War…
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Over 500 copies sold and so many STELLAR reviews! ⭐️⭐️⭐️⭐…
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